Involving Humanising Service Users in Designing their Own Sensing Technologies to Help Manage Health Problems
Dr Katie Siek, Associate Professor for Informatics at Indiana University in Bloomington presented a very inspiring seminar on Wednesday 26th August which was co-hosted between Duncan and Jordanstone College of Art and Design (DJCAD) and SDHI and chaired by Dr Wendy Moncur. If you missed the opportunity to attend the seminar or wish to listen again we are pleased to provide you with an audiopodcast of the event.
Humanising Healthcare Seminar – 25th March 2015
SDHI in collaboration with NHS Fife, the Scottish Improvement Science Collaborating Centre (SISCC) and the International Futures Forum (IFF) hosted an interprofessional and interdisciplinary seminar and workshop with 20 participants to envision the future of a healthcare system currently under strain. Dr Margaret Hannah, Consultant and Deputy Director of Public Health in the NHS Fife and author of ‘Humanising Healthcare: Patterns of Hope for a System under Strain’ and Graham Leicester, Director of the International Futures Forum (IFF) faciliated the afternoon with SDHI Co-Director Thilo Kroll.
Healthcare systems are under ever increasing performance pressures and exposed to massive rises in expenditures. At the same time criticism of the way we deliver health care grows highlighting the lack of compassion and a detachment of people’s life priorities and choices. Inequalities in health care access, treatment use and outcomes are not being tackled adequately. The research that supposedly generates the evidence base for effective therapies and interventions is selective, exclusionary, de-contextualised and for many long-term conditions flawed. Faced with a growing number of people who manage not one but multiple long-term conditions outside institutions in diverse community settings health care systems lack co-ordinted, integrated quality practice models that are centred around people’s lives and not primary their health conditions.
So, what are the alternatives to the status quo? What can we learn from the past? Perhaps, very timely 2015 saw a re-publication of the book ‘A Fortunate Man: The Story of a Country Doctor’ by John Berger and Jean Mohr. The book had originally been written in 1967 and was based on the sensitive portrait of John Sassall, a GP in the Forest of Dean. It illustrates his relationships with the diverse residents of this rural community and his approach to understanding the delivery of health care in the context of the social and environmental fabric of rural living. A quote from the book illustrates this very well
“Landscapes can be deceptive. Sometimes a landscape seems to be less a setting for the life of its inhabitants than a curtain behind which their struggles, achievements and accidents take place. For those who, with the inhabitants, are behind the curtain, landmarks are no longer only geographic but also biographical and personal.” (pp 18-21)
Margaret Hannah describes in her book the way our current healthcare arrangements are costly, guideline driven and dis-ease and disorder focused. Hope lies in adopting a salutogenic, asset-based approach that works with (not for) individuals and communities as co-creators of health. The workshop identified opportunities for transformational change in the way we deliver healthcare through co-creation approaches and participatory action research. It also requires the collaboration with non-traditional partners in health, i.e. community organisations, local authorities.
We are currently working on a briefing paper based on the workshop, which we will make available for reflection and discussion shortly.
Jean Cathro and Judith Drake of the Social Enterprise ‘Crossing Countries’ presented on their 2014 trip to South Africa providing disabled students with opportunities for volunteering and both South African and Scottish partners with many valuable experiences that truly challenged boundaries. The first part of the seminar presentation is now available as a video.
Students with disabilities who are interested in joining Judith and Jean on their 2015 trip can contact them directly at firstname.lastname@example.org You can read more about Crossing Countries on their website or Facebook page. Or you may follow them on twitter @CC_Travellers
SDHI Webinar – Advancing Global Disability Data and Disability Inclusive Development
Thilo Kroll, Professor of Disability and Public Health Research and Co-Director of the Social Dimensions of Health Institute (SDHI) at the Universities of Dundee and St Andrews presented a webinar ‘Advancing Global Disability Data and Disability Inclusive Development – Recommendations from a United Nations Report’ on Tuesday 16th December 2014. The slides for Thilo’s talk can be found below
SDHI Research Showcase and Fair on 1 December 2014
We were pleased to see so many colleagues, students and friends join us at our recent Research Showcase and Fair in St Andrews. The event marked a cross-section of current and recent research and activities that SDHI affiliated researchers have been involved in and also created opportunities for cross-disciplinary and inter-university discussions. For 11 years SDHI has been working with NHS colleagues and NGOs and the business sector to generate high quality research of impact. The day also generated refreshed impetus to work across institutional and disciplinary boundaries in the future and to ‘connect to transform lives’ locally and globally in line with SDHI’s current strategy.
SDHI Seminar – The production of socio-symbolic marginality and the politics of disposability. Challenges for professionals working with marginalised groups
We are pleased to make available the video recording of Dr Fernando Fernandes SDHI Seminar presentation ‘The production of socio-symbolic marginality and the politics of disposability. Challenges for professionals working with marginalised groups’ This seminar was held on Thursday 4th December.
SDHI Seminar – The feasibility and acceptability of Alcohol Brief Interventions in youth settings in Scotland
Dr Tessa Parkes, Senior Lecturer in the School of Health Sciences at the University of Stirling gave a very interesting presentation ‘The feasibility and acceptability of Alcohol Brief Interventions in youth settings in Scotland’ on Thursday 27th November 2014
Further information can be found on the seminar flyer
Seminar – Jason Prior on dilemmas in the planning, mapping and design for health and wellbeing
Dr Jason Prior, Associate Professor and Research Director at the Institute for Sustainable Futures at the University of Technology (UTS), Sydney presented an inspiring and thematically wide-ranging seminar on the understanding of the complex socio-spatial contexts for health and wellbeing. An audio-podcast of the event is now available
Seminar – Providing adaptive health updates across the personal social network
Dr Wendy Moncur, Reader in Socio-Digital Interaction, Duncan of Jordanstone College of Art & Design, University of Dundee presented a seminar entitled ‘Providing adaptive health updates across the personal social network‘ on Thursday 13th November. The video recording of Wendy’s presentation is available now.
SDHI Seminar – Challenging behaviour and disability discrimination in Australian Law
On the 29th of September, Dr Karen O’Connell, UTS Sydney, Faculty of Law gave a very interesting presentation on discrimination of children with challenging behaviour disability law. A video of this presentation is now available.
SDHI Seminar – Labyrinths of Drug Trafficking
In her presentation on the 19th June 2014, Dr Andrea Rodriguez explored the life experiences of young gang members in Rio de Janeiro who had been involved in drug trafficking. She highlighted the challenges they were facing when attempting to make the transition into a life without crime. Moreover, she laid out some strategies to facilitate the transition. The seminar was introduced by Dr Fernando Fernandes, SDHI.
SDHI Webinar – Violently acquired spinal cord injury in Haiti
On Tuesday 11th March 2014, Fiona Stephenson, Clinical Nurse Specialist and founding member of the Haiti Spinal Cord Injury Working Group and Co-ordinator of the Haiti Spinal Cord Injury (SCI) Database presented an inspiring and insightful webinar on the context of violence as the leading cause of spinal cord injuries in Haiti. Fiona, who is also a Co-Founder of the International Network of Spinal Cord Injury Nurses and the International Spinal Cord Society (ISCoS), discussed in her webinar the challenges to providing basic life sustaining care and rehabilitation for gunshot injury survivors in a resource poor environment. Mortality and medical complications are extremely high, skill and extensive despite the great skill, creative mindsets and phenomenal willpower of the health care teams on the ground. The earthquake that shattered Haiti in 2010 has taken a further toll on a very rudimentary health care infrastructure. Gun violence is not abating. Despite much innovation and legislative changes, people who live with the disabling consequences of violence still find it difficult to find support, accessible environments and opportunities for full societal participation and inclusion. Many promising facilities are threatened by closure due to a lack of funding. But despite all adversity, there were many stories of hope, human spirit and resilience, of people pulling together and becoming advocates for their own life, against gun violence and for better support services and health care.
Fiona’s webinar presentation can be viewed here. We will add an audiopodcast shortly.
Dr Damien Williams, School of Medicine, University of St Andrews gave a very nuanced and greatly reflective response to Fiona Stephenson’s presentation.
If you would like to learn more about gun violence in Haiti and its disabling consequences, we recommend to purchase the book ‘Gun Violence, Disability and Recovery’, edited by Cate Buchanan, Director of the Surviving Gun Violence Project. The book is available as an ebook or paperback on the organisation’s website.
SDHI Webinar – Making your research matter: engaging with #social #media
On Thursday 6th March 2014, Emma Burnett, Lecturer in the School of Nursing & Midwifery at the University of Dundee presented a very informative Webinar on how to use social media in research. Emma is currently a PhD student and has made use of the numerous opportunities that Twitter for example present for PhD students to network, provide social support and share information and resources. Emma also spoke about how social media can be used to disseminate research findings to broad and targeted audiences for impact. Social media are here to stay and it is useful to reflect about how to engage with these technologies in a meaningful and safe way. If you have missed Emma’s talk, you can listen to it here on our website. You have the choice between an audio podcast and the webinar that includes the full slide presentation (available shortly). For streaming of the recording, click here. We are working towards improving the audio quality. So apologies if this is not great.
Gun violence, disability and recovery
Cate Buchanan, Director of the Surviving Gun Violence Project based in Sydney, presented a Webinar on her forthcoming book that has been developed over the past 3 years with contributors from around the globe. It brings together survivors of gun violence and their experiences and very personal stories with those of advocates and activists, academic researchers and professionals from many disciplines. Unlike most studies of gun violence it does not focus on prevention or mortality but on the disabling consequences of gun violence in various contexts. Examples from Haiti, Burundi, the United States and many other countries are included in the book. Gun violence, Disability and Recovery is positioned at the intersection of health, human rights and disability and grounded in a social justice, public health and environmentally focused understanding. The book is seen as a starting point of further research, advocacy and knowledge mobilisation activities of this emerging network.
A recording of the webinar and the new book Gun Violence,Disability and Recovery is now available to view here and Cate’s PowerPoint presentation is available here
SDHI Seminar presentation on transportation and community
On Tuesday 17th December, Lia Poeder, visiting Occupational Therapy researcher from the United States presented findings from an exploratory study on community access, public transport and participation as part of an SDHI seminar. The recording (apologies for some sound problems which resulted from construction activity in adjacent rooms) and the slide presentation are now available. The study embraces a socio-relational understanding of disabled access. Built-environment accessibility is crucial. However, making sure that buildings and transportation options are physically accessible is not enough. The ‘human factor’ is of equal if not greater importance to ensure that people with disabilities can actually use public transportation in a purposeful and safe way. You can watch the video recording of the seminar here.
SDHI Webinar – Spatial dimensions of repeat prescribing safety in UK general practice
On Thursday the 28th of November, Dr Suzanne Grant, Social Anthropologist and Lecturer in Population Health Science at the University of Dundee presented her Webinar ‘Spatial Dimensions of Repeat Prescribing Safety in UK General Practice: An Ethnographic Study’. To view the recording of Suzanne’s Webinar click here.
For further information please contact Suzanne at s.m.grant @dundee.ac.uk
Public Engagement Day
On Wednesday 17th July, Dr Helen Moore, SDHI presented a webinar with study findings that highlight what matters to people after stroke. Current outcome measures in rehabilitation practice are not well matched to what matters to patients as they participate in community rehabilitation. Their lack of accessibility precludes in many cases assessments from the patient perspective. If you missed the Webinar, here is a chance to listen to the Webinar again and to look at the slides. The research team would be very interested in hearing your views, experiences, thoughts etc. Please contact the PI for the study, Dr Thilo Kroll at t.kroll @ dundee.ac.uk
Care Space 1: Future Designs for Wellbeing Symposium and Workshop
On Thursday 27th June, an interdisciplinary group of academics and practitioners came together on invitation of SDHI and the Geddes Institute of Urban Research at the University of Dundee to discuss the future of care space design in urban environments. The group consisted of architects, town planners, geographers, psychologist, artists, occupational therapists, computing specialists and nurses. As demographics are changing towards an increasingly aging population who predominantly live in single households there has also been a reduction in care home places and a move towards providing personal and health care in people’s home environments. At the symposium implications of these developments on the design of homes, services and age-friendly cities was examined. The role of urban green spaces and technology was highlighted as much as the need to engage communities in planning efforts. Communication is essential and planers need to be cognisant of people traditionally left out of planning efforts (e.g. People with communication disabilities or learning disabilities). Also it is important to consider how different individuals and population groups experience and perceive their environment. The importance of links between home, hospital and community environments was highlighted and the need to assist ‘vulnerable’ citizens with the navigation of complex communities and services. We will provide further summaries and updates of this event soon
Mobilising Knowledge to Improve Health Care – Workshop
This workshop, part of an NIHR Health Services and Delivery Research programme-funded research project on approaches to knowledge mobilisation (KM) in health care, was held in London on Tuesday 25th June 2013. The project seeks to promote cross-sector and cross-country learning. To do this it is mapping the KM strategies currently used by prominent research funders, research producers and research intermediaries in health care, social care and education. It is teasing out the models and theories that underpin these strategies. It is also exploring what is known about their success or otherwise. More information about the project can be found here.
The aim of the workshop was to share emerging findings with key stakeholders in NHS research. Participants considered the best ways to ensure that the study findings can be used to improve KM strategies and ultimately health services through presentations, discussion and debate.
‘Ageing and compound caregivers of people with learning disabilities’ Professor Liz Perkins, Associate Director, Florida Center for Inclusive Communities, presented her Webinar on Thursday 18th April. The Webinar recording can be found here
‘Disability Surveillance using National Household Surveys in the United States: Where have we been and where are we going?’, Eric Lauer, Research Specialist, Institute on Disability, University of New Hampshire, United States presented the above seminar on Monday 25th March. A recording of this seminar will be available shortly.
‘Secondary datasets in disability and health: tools for researchers using United States datasets’ Arun Karpur and William Erickson, Cornell University, New York presented the above SDHI Webinar on Thursday 6th December. A recording of this webinar is now available on line or to download.
SDHI’s 2nd Day of Public Engagement
As part of the Economic and Social Research Council Festival of Social Science and Dundee Science Festival, SDHI once again hosted a day of public engagement ‘Taking control of wellbeing and social participation’ on Saturday the 3rd of November from 10am to 3pm in Dundee Central Library, Wellgate Shopping Centre.
Health and Wellbeing through Literature, Film & Theatre by Lisa Nicoll
SDHI hosted a series of events presented by Lisa
Saturday 3rd November at 1pm – Short Play (written and performed by Lisa)
Acceptance is Lisa’s first one woman play. Based on true stories, follows the story of Scarlet, 30, who since the age of 15 has spent her life trying to fit in and be liked and loved by others – friends, family and men. Pressured by her need to be popular and fit into her surroundings she finds the easiest way to make herself feel confident, strong, chatty and liked is to go out and have a drink.
Thursday 18th October at 5pm – Film presentation and discussion
Caked follows the story of teenager Jess who struggles to keep her family together after her father is sent to prison. Jess becomes a carer for her mum who has not left her bed for weeks and for her younger sister who has become quiet and withdrawn. Jess works in a shop, studies at school and cooks and cleans. She shuts everyone else out in a bid to protect her family and in doing so takes a path she would not have chosen…………
Thursday 4th October at 5pm – Film presentation and discussion
Wasteland is a short film written & directed by Lisa Nicoll. It is based on research carried out with teenagers in the Coatbridge Locality. Over a series of 7 weeks Lisa gained stories about what it is like to live in the area as a teenager, she then brought all the stories together and wrote the short drama script Wasteland.
For further information about Lisa visit www.lisanicoll.co.uk
‘Health professionals’ beliefs about domestic abuse and the issue of Disclosure’ Dr Caroline Bradbury-Jones, School of Nursing & Midwifery and Professor Julie Taylor, School of Nursing & Midwifery and Head of Strategy and Development (Physical Abuse in High Risk Families) NSPCC presented the above SDHI Webinar on Monday 15th October. This webinar can now be viewed here Please note, in order to view it you would need a Java enabled web browser. Some mobile devices are not enabled at this time. Please continue the discussion by emailing us at SDHI @dundee.ac.uk.
“Employer practices in retention, advancement, and inclusion of people with disabilities” Susanne Bruyère, Professor of Disability Studies, Director of Employment & Disability Institute, ILR School, Cornell University on Monday 17th September 2012
For further information please see Susanne Bruyere seminar 17 September 2012 flyer
Susanne’s presentation is available to view here
Pre-Viva PhD Seminar
“A realistic evaluation approach to understanding the uptake of cardiovascular health checks”, Ruth Dryden
Tuesday 18th September 2012 at 11.30am
Esk/Bruar, The Mackenzie Building, Kirsty Semple Way, Dundee
For further information please see Ruth Dryden viva seminar flyer
‘Cancer rehabilitation and family-focused preventive intervention’, Catherine Marshall, Research Professor, Educational Psychology, Northern Arizona University
Tuesday 10th July, 2012 at 4.00pm
Baxter 1.36, 1st Floor, Tower Building, University of Dundee
for further details please click Catherine Marshall seminar 10 July 2012
The video stream of the presentation is now available for viewing.
‘Public Health and Disability: Unlikely but emerging partners’, Don Lollar, Director of Center for Excellence in Developmental Disabilities, Professor, Public Health & Preventive Medicine, Oregon Health & Science University in Portland
Thursday 21st June, at 5.00pm (UK time)
You can view a recording of the webinar here
Rethinking the ‘war on obesity’: an ethical argument, Dr Stacy Carter, Centre for Values, Ethics and the Law in Medicine, University of Sydney
Friday 18th May 2012, 2.00pm-4.00pm
Room 2F13, Dalhousie Building, University of Dundee
Dr Carter’s presentation will be available shortly
Centre for Medical Education Seminar (Co-hosted with SDHI)
‘Communication matters: doctors must learn with, from and about colleagues and patients’, Professor Alan Bleakley, University of Plymouth
Tuesday 15th May 2012, 1.00pm-2.00pm
Room 2S13, Dalhousie Building, University of Dundee
Professor Bleakley’s presentation can be viewed here
‘Patient Reported Outcome Measures (PROMS): Challenges for people with low literacy and learning disabilities’, Karen Ritchie, Head of Knowledge Management and Deepa Jahagirdar, Research Associate, Health Improvement Scotland
Wednesday 9th May 2012
SDHI participation in Meet the Scientist
SDHI was present at the recent “Meet the Scientist” event in the Dundee Science Center. The event allowed school children and the public to meet and discuss some of the scientific work taking place in The Universities of Dundee, St Andrews and Abertay.
SDHI asked people to prioritise what they value about health care apart from their health.
‘Surviving Gun Violence Project’, Cate Buchanan, Director of the Surviving Gun Violence Project
For the full presentation and discussion click here SDHI Webinar ‘Surviving Gun Violence’
Social Network Analysis workshop led by Professor Robert Raeside, Professor of Applied Statistics, Edinburgh Napier University
Tuesday 6th March 2012, 1.00pm-4.30pm
Room 2F15, Dalhousie Building, University of Dundee
Social Network Analysis Workshop
Seminar (Co-hosted with the Centre for Medical Education)
‘Professional norms: combining sociological and philosophical perspectives on professionalism in healthcare’, Professor Alan Cribb, King’s College London
Monday 13th February 2012, 3.00pm-5.00pm
Room 2F13, Dalhousie Building, University of Dundee
Alan Cribb seminar flyer
Geography SDHI Seminar
‘Using links as basic data in social science research’, Dr Kaberi Gayen, Associate Professor, Department of Mass Communication and Journalism, University of Dhaka, Bangladesh
Monday 28th November 2011, 2-4pm, Room 2G14 Dalhousie Building, University of Dundee
Pre-Viva PhD Seminar
“Exploring the pathways to poor health in the ‘hidden population’ with low literacy”, Phyllis Easton
Thursday 24th November 2011, 11.00am
Meeting Room 1, School of Nursing & Midwifery, Airlie Place, Dundee
‘Critical Geographies of Well-Being’, Dr Tim Schwanen, University of Oxford; Dr Sarah Atkinson, Durham University, Dr Thilo Kroll, University of Dundee, Dr Ed Hall, University of Dundee
Wednesday, 16 November 2011, Dalhousie 3G02, 1-4pm (tea/coffee at 2.30), University of Dundee
‘Thinking about a good life for people with learning/intellectual disabilities’, Prof Jan Walmsley
Thursday, 10 November 2011, 3.00pm-5.00pm
Room 2S17, Dalhousie Building, University of Dundee
‘Communities, wellbeing and science’: SDHI Day of Public Engagement
29 October 2011, 10.00am-4.00pm
Dundee Central Library, Wellgate Shopping Centre
Knowledge exchange event
‘Increasing the Resilience of Vulnerable Adults to Natural Hazards and Disasters’
28 September 2011, Dundee
‘Making health care safer’: Learning from Social and Organisational Research
25th – 26th June 2012, St Andrews
Exploiting Existing Data for Health Research
9th-11th September 2011, St Andrews
‘Making Health Care Safer’ Learning from Social and Organisational Research
27-28 June 2011, St Andrews
Exploiting Existing Data for Health Research
17-19 September 2009, St Andrews
Enhancing Self Care – Helping People to Help Themselves
15-17 September 2008, St Andrews
Exploiting Existing Data for Health Research
18-20 September 2007, St Andrews
Support for Self Care: An Update
30 April 2007, Dundee
Enhancing Self Care – The Evidence Base
3-5 May 2006, West Park Conference Centre, Dundee
What have we learned since the Black report?
30 September – 1 October 2004, St Andrews
What should we do about transplant organs? An interdisciplinary workshop on the ethics and economics of a medical crisis
30 June 2010, Parliament Hall, St Andrews
Implementing a Knowledge Exchange/Knowledge Mobilisation Practice
10 June 2010, St Andrews
SHIP Training Course – Modern demographic methods in epidemiology
1-3 June 2010, St Andrews
SHIP Advanced Training Workshop
6-10 April 2010, St Andrews
Safer together? Exploring collective learning for safer patient care
25 February 2010, University of Glasgow
Share your experiences of researching health care organisations! HORnet
24 November 2009, St Andrews
ESRC Research Seminar Series – “Making sense of Knowledge Production”
6 November 2009, St Andrews
A National Workshop to Share and Discuss Research Findings into Clinical Networks
4 February 2009, Manchester
SDHI Launch Event
3 December 2003, St Andrews